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Yeah well our close friend's son is 20 and has spent his entire life taking mountains of pills every so he can digest food, doing chest physiotherapy numerous times a day, and going in for lengthy hospital stays to clear his lungs and body of infection, and wondering if this is the one he won't bounce back from. He's an amazing young man and I think God wants him in the world. We pray every day that they are able to find a therapy for his specific gene mutation as they have for many other CF patients who can now, thanks to these therapies, live virtually normal lives.We'll never know. My kids are 23 and 20 now, and make their own decisions. But, I'm a man of strong conviction and faith, and i truly believe that had my children been diagnosed with a disease that Gene Therapy would help in some way, I would not have elected to do so. God made us who we are and we all serve a purpose.
These therapies are miracles from God and from the abilities he gave us to learn and heal and cure.